Well, we finally got all of Liberty's blood tests completed (oh - except for ONE which is not considered a priority and requires a LOT of blood). There were four tests that were considered of extreme importance and could not be done all at once lest we drain the child of all of his blood. No one likes to put their child through the trauma of being held down to have blood taken. Our child who used to do so well at the doctor's office has been traumatized so much in the last month that he is afraid to even stand on a doctor's scale, looking behind him to see if someone is going to wrestle him down. I suppose in time, he will get over it. And, they had to be done if we are going to finally get a clear picture of where this child stands metabollically and tailor biomedical treatments to his needs.
So, it was awfully stressful, but it's finally done and over with. I thank my father again for providing the money needed up front to get some of these tests because, as I have stated before, some of the kits require a check and have to be FedEx-ed. I really hated having to handle all of the blood and urine myself, but we did. And, any receipts we get back of course will be filed with insurance immediately. Our insurance is paying for the MB12 shots at 80/20. They, however, did not pay much for Dr. Bock's fees, which I figured they would not. He was not a doctor on the list.
In the meantime, we are seeing some great results so far with the MB12 shots and I have just started the supplements the doctor gave us, beginning with zinc liquid at night and cod liver oil. The teachers report to me what he does each day in kindergarten and the reports are basically glowing! We had Lib on other supplements from another doctor last year, but we are kind of starting afresh with this doctor and doing things his way. Last year, we were given a list of supplements to try and we began them all at once. Dr. Bock's office said that this is not the way it is done, that we need to give one for at least three days, note any side-effects, then proceed to give the next. Wish I had had this information last year, huh? What I am most eager to find out is his levels of METALS.
So, now I have to prepare what I call Liberty's Daily Record for all of the supplements so I can list out any positive or negative reactions. This is a lot of work to keep up with, but it is so important that I do. I feel like Super Sleuth, trying to get to the bottom of this puzzling mystery. The doctor can do his part by looking at his labs and advising me of what action to take based on his experience. But, it is also crucial that I keep good records and observe Lib closely so I can give accurate reports to the doctor. Even little things I think are insignificant could offer a clue to what's going on with the child.
Last night, he was up laughing at 1:00 AM. He could not get back to sleep until around 4:00. I did give him some Zen (if you are not familiar with this, this is GOLD) and he went back to sleep. He bounded out of bed at 8:00 raring to go to school, while I drug myself to the car with my coffee. And everyone asks what that episode was all about? And, as usual, I say, "I have no earthly idea." When you are watched under a microscope, everything seems to require an answer. Now, I KNOW that there are neurotypical children who sometimes wake up at night, or who do odd things which their parents don't understand.
Ah well, just another day in the life. But, hey, we ARE making progress and that's all that matters.
8 comments:
Hey, we are going to see Dr. Bock in 2.5 weeks. I'm hoping for a miracle. I would love to hear more about your experience with Dr. Bock
I loved Dr. Bock. You will have to brace yourself for the pace off the office, however. Maybe its a south/north thing, we are from the south, but though everyone was pleasant to us, things did move fast. The office is in an old restored building and Bock's office is upstairs. Not the greatest place for a doc's office as the rooms are small. But, the most important thing is that Bock took around 3 hours with us. He observed Liberty and the man actually read all I wrote. Be painstaking in what you right down because this man will actually read everything. I have NEVER had a doctor do that in my experience. I think he is pretty cool. A man of few words, but you can tell he KNOWS what he is doing. Anything else you want to know, just ask! Where will you be coming from and where staying,etc?
Also, did you read what I said about the labs? The draw up there was a hard draw. The phlebotomist in the lab could not get enough blood. She said Lib was dehydrated, but I just don't think she was that good. Don't let that scare you. If you can't get everything done there, they will give you prescriptions. And, if you have insurance, prescriptions are better because you can BILL INSURANCE when you go to get your labs done. The only thing you cannot bill is the kit or kits they give you to do on your own. These are things that have to be sent to private labs. I was very glad we got the scripts written. Even though we technically should have moved faster (and we would have had we had the money), we still were able to pace Liberty in bewteen the blood draws. I just didn't want SO much taken from him all at once.
We will be traveling from Houston. I'm sure we will be broke after all the treatment is done. We are also self employed. But at this point I'd rather be broke then to live with this nightmare. I'm so depressed over my son's situation....I'll do anything.
First off, I KNOW where you are, and second, you are going to see one of the best in the field!! Chin up. I know it's hard. If you would like, email me if you don't want to leave too much personal info on the blog. I can tell you where we stayed. How old is your son?
Oh - you will be loving Rhinebeck. It is GORGEOUS.
I will be glad to help you in any way I can even if its just emotional support.
Also, I've read his new book the 4D's and have his new DVD. I found Dr. Bock from the Early Show. Been waiting since June to see him. He sounds like the real deal. I'm praying for a miracle.
I tried to find your email on this blog, but couldn't find it. I guess I can give you mine. My son is 3 years as of May 28th of this year?
My email is under "contact" if you go to my profile in the left hand corner.
You are lucky you are starting out early with your child. The younger the better.
If for some reason that email does not work, leave me another comment. I have 2 email addresses I use.
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