At the end of this post is a link to a video of Stan Kurtz's son Ethan. Ethan recovered from autism. Stan, his father, is not a doctor, but he discovered what worked for his son and also recovered himself from ADHD in the process. Pretty amazing stuff. He is well-respected in the autism community.
The brief video demonstrates the difference in Ethan pre- and post-antiviral.
I am encouraged today, as we are on day 15 of the anti-fungal. Last night between 12 and 3:30, Lib was up screaming and howling. I got him his charcoal and some Motrin. I rocked and rocked. Finally he slept and amazingly got up in time for school.
Liberty's liver function tests were okay, so now we get the Valtrex, the anti-viral filled. I must prepare myself for Phase II.
I might be chewing rawhide just to get me through Liberty's die-off reactions, but I have to try. If he could have anything as remarkable as Stan's son, it will be well worth it.
So far? Moments of incredible eye contact. An amazing day at school today since I did not send him with the antifungal first thing. He brought his bag of crackers to the teacher and said, "Cracker." On a computer reading game he scored something like 14 out of 17. What will he do with the anti-viral I wonder? I read it doesn't work for all kids on the spectrum.
As soon as he got off of the bus, I gave him the Diflucan, and even with the charcoal I gave him, within about an hour, he began a kicking, howling, screaming fit and threw things all across the room. He tried to kick a large painting off the wall. I gave him a suppository to move the yeast through, then put him in an Epsom salt bath. He got better.
This is die-off. This is some bad die-off. It's like helping an addict get clean. It's hell. I'm trying to stay strong for the well-being of the boy.
Anyway, here's the video. Pray for us. Film at 11 as they say. I will keep ya posted.
Postscript - The compounding pharmacist told me to give the charcoal 2 hours after the Diflucan. Now, that would have been useful information, say, about two weeks ago. So, that is another reason why Lib is having such trouble, the dose is being reduced by the charcoal.
You know I'm a nutcase at this point.
http://www.youtube.com/watch?v=aEw0Y5LJ6vg
5 comments:
What a great video. It makes me cry every time I watch something like that.
So sorry Liberty is suffering. You are so strong.
Key-rist that nobody told you that 2 weeks ago! But now you've told OTHER parents that will be spared. Thank you. I'm sending some friends over to your blog for support and guidance!
Thanks, everybody. I truly am going through so much and so damn tired. Will this work? I don't know.
I just found your blog - my son went thru the same thing. I also learned that you should separate the probiotic from diflucan about a month into the process. He also started day 1 with Valtrex because he has an existing viral issue. It took awhile to get the right balance and you are right - it really is like being a detective.
Sounds like he's moving forward though and hopefully the die off will end soon. I'm behind so I'm going to keep reading!
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