The Saga Continues...

Liberty's worse night ever. I say night but really it was morning.

I thought he would have had a better day, knowing what I know now about the charcoal not to be given until at least two hours after the Diflucan. And, Dr. Bock's nurse told me to give two to three capsules twice a day on an empty stomach. This takes some planning.

So, he had a great day at school as I did not give him the Diflucan in the morning. After he got off the bus at 2:30, I gave it to him. No problem. He ate. I waited for the food to digest. So, about 7 PM, I gave him the charcoal. He slept. I went to bed early, just in case we were up.

At 1:00 AM, he was up, raring to go. He ran around the house and turned on all of the lights, he giggled. I somehow got him back to bed.

At 3:00 AM, he was up again with high energy, but happy, seeming to be okay. Thought we were out of the woods. I gave him Motrin in case he had a headache or bodyache which is common with yeast die-off.

By 6:00 AM, he had been up playing since 3:00. Then the howling began. Then the screaming, the kicking, the throwing things, pushing me out of his room, slamming his door hard over and over again, I mean, just totally out of control and in pain. Two suppositories, nothing. I throw on clothes and get my husband to watch Liberty, mainly so that he does not hurt himself. He hurt his leg pretty badly the other day by kicking something and has a giant, bulging bruise.

This raging goes on for two hours.

I went to the store and got an enema, as much as I hate to post that, this is the reality. I come home to the continuing screaming, give him part of the enema. Nothing. About 20 minutes later, he finally moves his bowels. He gets better. Thank you God.

He is suddenly hungry and happy and bouncing around the house.

Then the howling and screaming again. I noticed that he ate my homemade gf/cf graham crakers now made with sucanat which has less sugar. I am thinking that this is exacerbating his symptoms.

I received a comment from an anonymous reader (bless you) that the charcoal is constipating. This, after the nurse said she had never heard of it being constipating. I told her I thought it was, too.

This morning, I call Dr. Compain, the on-call physician for Dr. Bock. He says that it is unusual to have a die-off this bad, this far into the game, and that he must have an incredible yeast overgrowth and my need to go on a special diet (I did not want to hear that.) He told me to reduce the dose and to give him prune juice and increase Vitamin C to help move his bowels and he, himself, said the charcoal IS constipating. Obviously, I need to clue the nurse in, right?

I am half-dead and about sick of trying to figure this out for myself. He said Dr. Bock might tell me not to give the Valtrex until we get a handle on the yeast because he said the Valtrex will "make the yeast go crazy." Oh my God, any crazier than now? It can be worse?

I have heard that stopping altogether can make it worse. Dr. Compain said we might have to be on this for a few months before the Valtrex.

I cannot take another morning like this one. I will be divorced, for certain. Ask me how hard this is on a marriage. My husband busts his butt at work, works all of the time because he has to since I cannot work as much and now Liberty's meds are costing more. I need emotional support when I'm going through this, though. I work too, at home. I run the household and take care of this child 24/7. We need to be in each other's corner. He is emotionally shot out and so am I. We are just at each other's throats. This does not help.

I looked back over my notes, and there have been nights where Lib slept. So, maybe we are getting through the worst of it. God, I hope so. It is 1,000 years until Monday when I call Dr. Bock's office and get a new plan.

Until then, I will cut the dose to 2/3, and go out and by plenty of prune juice today. Cut out the crackers or make them with Stevia. I tried them with stevia, and they were not that great, but will try again. The bean flour I use is high protein, so carb wise, it shouldn't be too bad, should it? Or cut them out all together and then wonder if he will go through withdrawal from that?

Folks, I am open to suggestions.

Keep us in your prayers.

I think I am deciding to stop the antifungal until Monday when I can talk to someone at the office with a clue. I cannot take another night like this, and if can't tolerate it, what must my poor child be going through?

It's 10 AM, Lib just fell asleep and I am on my way there...