Send me some LOVE

What a hard day. We tried to get an EEG for Lib but there was just a horrible snafu at the neurologist's office. I've never liked that office, but if you recall, there is a new neurologist who is really cool and I like him very much, mainly because he is not at all like "the others."

My husband went back in the EEG room with Lib this time. A woman poked her head out of the doorway and asked if Lib was allergic to anything. I said no. However, about a week ago when I was on the phone with a nurse, she mentioned that the EEG therapist will give Lib Benadryl. I said, "Whoaa... Benadryl has a paradoxical effect in Liberty. That won't make him sleepy." The nurse failed to write it down on the chart, and I forgot to say anything to the EEG therapist. You think she would have said something to me. So, according to my husband, she gave Lib a dose of chloral hydrate and then a great big dose of Benadryl. He began screaming and...well, you can imagine the scene from there. They kept waiting for him to go down. One hour of waiting...no one came out to get me and tell me that my son was screaming and would not go to sleep. My husband was irate, trying to get someone to come into the room because they had put a CD on in the room and it was skipping. He said no one was there to assist him.

What if Lib was having a bad reaction like an irregular heartbeat, or rapid heartbeat? Where is the doctor with the stethoscope helping us, making sure he's okay? Where the hell was everyone? I hate that my son had to suffer like that. It's the most helpless feeling in the world.

Why does this office assume that Benadryl is okay for everyone? I guess they thought they had it covered by asking me if he is allergic to anything. He was never actually allergic, but he always got hyper when he went on it and no doctor ever said, he's allergic to it. I guess, once again, it's my fault, but hey, it doesn't really seem like it's my fault!

Okay, so my husband was FURIOUS. I demanded to see the doctor right then.

Long story short, mad husband and screaming child go out to the parking lot so I can talk to the doctor. This doctor, though now part of the practice, has nothing to do with the method of the EEG. I'm sure he didn't know how they do it, only that they just do it and bring him the printout. He did apologize to me profusely, but it really wasn't his fault. Everyone was running around saying that they had noted it in the chart and I felt like saying that there won't be a next time because I'm not putting him through this again. It's so eternally frustrating.

On a lighter note, I still really like the neurologist. He asked me to describe what I was seeing in Lib and we think it is complex partial seizures. He gave me a prescription for a small dose of medication to see if it helps at all. He said for us to talk by phone more again about Lib. Clearly, everyone in that office was upset by what happened. They should be! I am waiting to talk to Dr. Bock on Friday before I do anything.

Poor little Lib. He was so miserable. I think he may have been hallucinating. He went in at 9:30 AM for his appointment. He finally went to sleep at home, utterly exhausted, at 4:00 PM. And, after all that, we still don't have an EEG. I'll be damned if we do this again any time soon. And, not one person has ever suggested an MRI.

Poor parents - we had to sleep deprive Lib by putting him to bed two hours earlier than normal and waking him up two hours earlier than normal (so he'd go down easy for the EEG) so we were pretty beat to begin with. And, Lib could have no water or food before the procedure. So, we were not exactly a pleasant group to begin with this morning.

Oh---and of course, that constipation I told you about? Well...let's just say I was scraping the walls down around 3:00 after hosing Lib down in the tub. But, I wasn't upset. I was celebrating the moving of the bowels.

It's funny how much I really appreciate just the basic things.